Question:
Jim,
I am writing this letter to see if you know any way of helping me. my boy friend is 54 years old and has had hepatitis c since 1995. he is a viet nam vet he has va medical but is a non service connected vet. he has cirrosis and liver canccer. the va sent him to a teaching hospital they sent him there for a scan the found liver cancer and told him that he was not a candidate for surgery and n not eligible for a transplant.
now what I truly believe in this case is that the teaching hospital takes their instructions from va of what they will pay for and what they wont.n they told him because he had cirrosis he was not eligible for trans plant this is not always the case I have researched and find that most liver transplants arte performed for cirrosis and liver cancer. is is true that va will n ot pay for transplant because the surgery is so costly and the anti rejection drugs.
I even offered to be tested to be a living donor if I matched they still said no. they say they don’t want to put a healthy liver in a diseased body. this is crazy. my boy friend recently started receiving social security disabilty but does not yet have medicare. he believes in va and a lot of people have tried to convince him to get a second opinion but he believes in va and thinks that they are trying to help him but with all the news about how vets are not being taken care of properly I don’t think va cares about his life one bit.they had him on a chemo drug that was approved in 2005 for renal cancer and just approved for liver cancer in early 2007 for liver cancer which they have now taken him off of saying it is not working.
he is jaundiced and va did nothing to help him or made any suggestions it is like they just don’t care. the fda info says it is n ot good to give the drug nexavar to patients with liver disease. all I want is the truth and if you could please give me any information you can find on this issue I would be ally eternally grateful if you could help me .I don’t want to see him die because of the va. please write me back
Answer:
I'll start by telling you that I'm a health care professional. I spent 35 years in hospitals and I understand how they work.
Today I'm deeply involved with many veterans...patients in the health care system. My best friend here is sick with a cancer and in the last few years I've seen him get his care from our VA hospital in Charleston, SC. That VA is connected to the Medical University of South Carolina much like your VA is to the local teaching hospital.
My friend has had 5 periods of remission and relapse. Each time he has to have chemo and radiation. He's been taken to Vanderbilt in Nashville for a bone marrow transplant. He's had numerous hospitalizations, CT scans, MRI scans, PET scans and much more.
The VA system has never batted an eye at the expense. When it comes to those vets who are very sick, the budget isn't considered. The bad press that you heard of wasn't about the medical care for veterans, it was about matters like convenience and sometimes things moving too slow.
The VA health system is maybe the best in the world. If he had private insurance the company may be trying to cancel it because he's too expensive and they need to make a profit. The VA has no such worries, they don't ever think of a profit.
It's unfortunate but the best medicine on the planet sometimes doesn't cure everyone. I can promise you that if a transplant would help, he would be on the list no matter any expense.
There is a reason other than money that he isn't being considered. It may be the Hep C...that can be a bad disease.
I'm afraid all you can do is trust that the system knows best. Again, I'm confident he isn't being denied anything because of any budget.